Conference Speaker Handouts

Speaker Handouts: Thursday, August 4^th, 2022

The Importance of Building Leisure Skills – Sylvia Farber, MEd, and Dawnda Daniel

Smith-Magenis Syndrome: Putting the Genetic Diagnosis in Context – Barbara Haas-Givler, MEd, BCBA

Teacher and Support Staff Training – Part 1 – Barbara Haas-Givler, MEd, BCBA

Speaker Handouts: Friday, August 5^th, 2022

Setting the Stage for Success – Barbara Haas-Givler, MEd, BCBA

Medical Management of SMS Across the Lifespan – Ann C.M. Smith, DSc (hon), Gail Reiner, DNP, FNP-C

• PRISMS_Slides MedMgmt_2022_v7.28_Handout_SL_FinASGR.pdf
• PRISMS_Med_Guidelines_Plus_Checklist.pdf
• SMS_MMG_DOC1_2022D_rev7.13.22FIN.pdf
• SMS_PRISMS_Refs_02_08_2022.pdf
• SMS_Review_of_Systems_2022.pdf

Managing Food Seeking Behaviors with Help from Prader-Willi Syndrome – Amy L. McTighe, PhD

A SMS Parent’s Perspective on Guardianship and Estate Planning – Randy Beall

• PRISMS_Guardianship_and_Estate_Planning.pdf
• Handout_of_estate_planning_tips_for_SMS_parents.pdf
• Household_agreement_template.pdf

It Takes a Village – Landre Kingdon, LCSW

Birt-Hogg Dube´ – Laura Schmidt, PhD, and Ann C.M. Smith, MA, DSc (hon)

Tech Talk with an SLP – Heera Chandani, MA CCC-SLP

Neurological implication in SMS – Andrea Gropman, MD

Behavioural phenotypes of Smith-Magenis Syndrome – Heidi Nag, PhD

SMS Organizations across the Globe – Astrid Diederichs, Detlef Diedrichs

Speaker Handouts: Saturday, August 6^th, 2022

Cutting-Edge DNA Sequencing Technologies and Smith-Magenis Syndrome – Zain Dardas, MS, PhD candidate

SMS Patient Registry Results: Speech-Language Development and Hearing Health – Christine Brennan, PhD, SLP

Building Bridges and Navigating Adult-based Healthcare for Individuals with Developmental Disabilities – John C. Berens, MD

Hitting a Bump in the Road; Thinking about psychiatric admissions – Landre Kingdon, LCSW

SMS Behavior 101 – Mary Beall

What a Parent Must Know about Special Education – Sylvia Farber, MEd