Speaker Handouts

PRISMS 11th International Conference included a variety of topics and speakers. Below are some of the handouts and other materials that speakers provided to the SMS community, categorized by the day the speaker presented their session.

Speaker Handouts: Thursday, August 4th, 2022

The Importance of Building Leisure Skills – Sylvia Farber, MEd, and Dawnda Daniel

 

Speaker Handouts: Friday, August 5th, 2022

SMS Patient Registry – Theresa Wilson, MS, RD and Sarah Elsea, PhD, Baylor College of Medicine

Medical Management of SMS Across the Lifespan – Ann C.M. Smith, DSc (hon) and Gail Reiner, DNP, FNP-C

Managing Food Seeking Behaviors with Help from Prader-Willi Syndrome – Amy L. McTighe, PhD

A SMS Parent’s Perspective on Guardianship and Estate Planning – Randy Beall

It Takes a Village – Landre Kingdon, LCSW

Birt-Hogg Dube´ – Laura Schmidt, PhD, and Ann C.M. Smith, MA, DSc (hon)

Tech Talk with an SLP – Heera Chandani, MA CCC-SLP

Behavioural phenotypes of Smith-Magenis Syndrome – Heidi Nag, PhD

SMS Organizations across the Globe – Astrid Diederichs, Detlef Diedrichs

Demystifying neurological symptoms in SMS – Andrea Gropman, MD

Speaker Handouts: Saturday, August 6th, 2022

SMS Patient Registry Results: Speech-Language Development and Hearing Health – Christine Brennan, PhD, SLP

Endocrine Issues and SMS – Stephanie Sisley, MD

SMS Behavior 101 – Mary Beall, MS Ed

Cutting-Edge DNA Sequencing Technologies and Smith-Magenis Syndrome – Zain Dardas, MS, PhD candidate

Building Bridges and Navigating Adult-based Healthcare for Individuals with Developmental Disabilities – John C. Berens, MD

What a Parent Must Know about Special Education – Sylvia Farber, MEd

Hitting a Bump in the Road; Thinking about psychiatric admissions – Landre Kingdon, LCSW