PRISMS Blog Guidelines
Margaret Miller is the Founding President of PRISMS. She began PRISMS along with her husband Scott Miller, Ann Smith and Brenda Finucane. She was inspired to help develop this organization after receiving the diagnosis of SMS for her infant daughter. There were no SMS organizations at that time and very little information on the syndrome. She has served on the PRISMS Board as President, Past-President, Vice President, (currently), and Board Member and has helped to chair and plan nine international conferences and nine research symposiums. She has been an invited speaker on SMS at educational conferences, college seminars, and the National Institutes of Health. Maggie is passionate about working closely with researchers and professionals and believes that we can only make greater strides in our mission when we work together. Maggie lives in a suburb of Washington DC, with her husband, daughter and son.
Connect with Margaret
Rachel Franciskovich is a board certified genetic counselor in the department of Molecular and Human Genetics at Baylor College of Medicine. She is involved in the care of individuals and families in the general genetics outpatient clinic at Texas Children’s Hospital, primarily in The Woodlands. Additionally, she assists with the management and care of individuals in the Smith-Magenis Syndrome specialty clinic. Primary clinical duties include: clinical evaluations, genetic testing coordination and selection, disclosure of results and information, and management of clinic flow and coordination.
Connect with Rachel
Nancy Raitano Lee, PhD, is a clinical child psychologist and associate professor of Psychology at Drexel University who specializes in developmental neuropsychology. She received her Bachelor of Science Degree in Human Development and Family Studies from Cornell University and her doctorate in Clinical Child Psychology from the University of Denver. Her research aims to augment knowledge about the causes and correlates of neurodevelopmental disorders through the use of innovative neuropsychological and neuroimaging technologies. While most of Dr. Lee’s research to date has focused on youth with other neurogenetic syndromes, she is currently collaborating with PRISMS professional advisory board member, Ann Smith, on a project in which they are examining the occurrence of autistic traits in youth with SMS and other neurogenetic syndromes. Dr. Lee is enthusiastic about doing more research focused on SMS and is looking forward to contributing to the PRISMS professional advisory board and getting to know the PRISMS community in the coming years.
Connect with Nancy
Tim Hibbs is married to Adrian Hibbs and has two children, Anderson 3.5 years and Audrey 2 years. They live in Mansfield, TX – a suburb of Dallas. Tim graduated from Oklahoma State University in 2008 and embarked on a 12-year Sales & Management career. Earlier this year he launched a consulting company, Tailwind Growth Partners. In his free time he loves to spend time with his family and friends. He loves to travel and enjoys teaching his kids to share in their love of tacos and barbecue! His son, Anderson, was diagnosed with SMS at 20 months old in December 2018. It as been a dually tough and beautiful journey for them. He feels blessed to have made such impactful connections through PRISMS and is extremely excited, and honored, to be a part of helping as many families experience the strength of our program’s support and resources as possible.
Connect with Tim
Sign up to receive various communications on the latest information regarding Smith-Magenis Syndrome (SMS) from the SMS community on education, research and awareness. Use the form below to sign up and tell us how you are connected to the SMS community. If you are a parent and/or caregiver of a person with SMS, we encourage you to complete the Contact Information form to provide additional information and to sign up to receive the PRISMS eBlasts.