The new PRISMS Webinar series is brought to you by the PRISMS Education Committee. The goal of the Education Committee is to establish new platforms which bring educational information and resources about Smith-Magenis Syndrome to the community at large, (via social media, technology, and other), in a more dynamic way, and encourage/activate engagement between families and professionals.

Upcoming Webinars

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Creating a Special Needs Legal and Life Care Plan

Date: Dec 8, 2020 at 7:00 PM Eastern Time

Description: Creating a future that provides for both your own financial needs and those of a dependent with special needs can feel overwhelming. This workshop will discuss four focus areas that should be considered with integrated planning, and a recommended timeline to avoid any disruption in the care of a loved one with special needs.

Presented by Kelly Piacenti, MA, ChSNC®, Head of SpecialCare, MassMutual and Jerry L. Hulick, CLU, ChFC, ChSNC, CLTC, General Agent Emeritus, MassMutual Financial Group

Past Webinars

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10 Basic Financial Steps for Special Needs Caregivers

Date Presented: Nov 10, 2020

Description: This workshop discusses 10 basic steps to help caregivers get started in preparing for the financial future of their dependent with special needs. As a caregiver of a dependent with special needs the single most important issue on your mind, regardless of the age of the dependent, is what will happen to my dependent after I’m gone. There are some needs that will always be present and they must be carefully considered and planned for appropriately. This workshop addresses such critical issues as applying for government benefits for Social Security and Medicaid, creating a Special Needs Trust, the importance of a Will and considering a Letter of Intent. Taking these 10 basic steps now can help ensure the type of care and quality of life for a loved one’s well-being today and tomorrow.

Presented by Kelly Piacenti, MA, ChSNC®, Head of SpecialCare, MassMutual and Jerry L. Hulick, CLU, ChFC, ChSNC, CLTC, General Agent Emeritus, MassMutual Financial Group

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Strategies to Increase Self-Engagement and Independent Play for Children with SMS

Date Presented: Sep 9, 2020

Description: Many children with SMS enjoy socializing and playing with peers and adults, but may have difficulty self-occupying for periods of time. This can become challenging for parents and caregivers as they try to balance home obligations, work duties, and caring for other family members. Learn some simple strategies and high-interest activities that promote more independent play and leisure skills, skills that can develop further over time and maturation.

Presented by Anissa Moore, M.Ed., BCBA, LBA. Anissa is an independent educational consultant and licensed, Board Certified Behavior Analyst (BCBA / LBA) specializing in the field of ADHD, autism spectrum disorders, emotional disturbance, oppositional defiance disorder, and other challenging behavior disorders.

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Supporting Your Child with SMS in Special Times

Date Presented: Mar 30, 2020

Description: In this special webinar with Barbara Haas-Givler, MEd, BCBA, caregivers can learn about strategies to support yourselves and your individuals with SMS during this difficult time with COVID-19, or any other difficult time.

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Special Education – Never too Soon to Plan for Next Year!

Date Presented: Mar 24, 2020

Description: In this session with Sylvia Farber, participants will learn key education ideas so that planning for summer and the next school year can be more successful!

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Food Seeking Behavior Management

Date Presented: Feb 2, 2020

Description: Dr. Amy McTighe, Director of Care Coordination at The Children’s Institute in Pittsburgh, presents on the management of food seeking behavior.

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The History of Smith Magenis Syndrome with Ann C. M. Smith, M.A., DSc (Hon)

Date Presented: Jan 22, 2020

Description: Ann C. M. Smith, M.A., DSc (Hon), discusses the history of Smith-Magenis Syndrome and the importance of what we have learned through research. Ann is a founding member of PRISMS and chaired the Professional Advisory Board (PAB) until 2011. She now serves as PAB Emeritus Chair, and has dedicated over 3 decades of her professional career to the study of SMS, the syndrome she co-discovered in early 1980’s.

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Understanding the Genetics of Smith-Magenis Syndrome

Date Presented: Aug 6, 2019

Description: Rachel Franciskovich, MS, CGC, PRISMS Genetic Counselor, discusses the genetics behind Smith-Magenis Syndrome. Rachel is a genetic counselor in the department of Molecular and Human Genetics at Baylor College of Medicine and offers support to the SMS community.

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SMS Patient Registry Webinar

Date Presented: Jun 22, 2019

Description: Theresa Wilson from the SMS Patient Registry presents information on what the SMS Patient Registry is, how the information provided is used, and how families can enroll using the new electronic consent form!

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Food Seeking Behavior Management

Date Presented: February 6, 2020

Description: Dr. Amy McTighe, Director of Care Coordination at The Children’s Institute in Pittsburgh, presents on the management of food seeking behavior. Dr. McTighe also discusses the SMS Model for Care Coordination at The Children’s Institute.

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The History of Smith-Magenis Syndrome,
featuring Ann Smith, M.A., DSc (Hon)

Date Presented: January 22, 2020

Description: Ann C. M. Smith, M.A., DSc (Hon), discusses the history of Smith-Magenis Syndrome and the importance of what we have learned through research. Ann is a founding member of PRISMS and chaired the Professional Advisory Board (PAB) until 2011. She now serves as PAB Emeritus Chair, and has dedicated over 3 decades of her professional career to the study of SMS, the syndrome she co-discovered in early 1980’s.

View Recording

Understanding the Genetics of SMS

Date Presented: August 6, 2019

Description: Rachel Franciskovich, MS, CGC, PRISMS Genetic Counselor,  discusses the genetics behind Smith-Magenis Syndrome. Rachel is a genetic counselor in the department of Molecular and Human Genetics at Baylor College of Medicine and offers support to the SMS community.

View Recording

SMS Patient Registry Webinar

Date Presented: June 25, 2019

Description: Theresa Wilson from the SMS Patient Registry presents information on what the SMS Patient Registry is, how the information provided is used, and how families can enroll using the new electronic consent form!