Led by Parents and Professionals

PRISMS is lead by a combination of parents and professionals, working together to guide the organization’s operations, programming and services. Our leadership teams would love to hear from you!

To contact a member of our Board of Directors, Staff, or Professional Advisory Board directly, please email us at info@prisms.org or call 972-231-0035

Executive Director

Michelle Larscheid
Executive Director

Michelle Larscheid has been with PRISMS for four years, most recently serving as Events and Community Engagement Manager. Michelle has been involved in all aspects of PRISMS’ programming…

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Board of Directors

Serving as a board member of a non-profit organization such as PRISMS is one of the most challenging and rewarding volunteer assignments. PRISMS Board of Directors is comprised of family members of persons with SMS.

Percy Huston
President

Percy joined the PRISMS board in 2006, initially to spearhead fundraising efforts. As an at-large member, he has since served on the finance…

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Margaret Miller
Founding Member

Maggie is the Founding President of PRISMS. She began the organization along with her husband Scott Miller, Ann Smith and ,Brenda Finucane. She was…

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Phil Ruedi
Treasurer

Phil has been a member of the PRISMS board since 2010, taking a short break in 2021-2023. He serves as Treasurer as well as chairman of the finance committee and as a member of the executive committee.

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Jackie Fallenstein
Vice President

Jackie became a member of PRISMS shortly after her son, Michael, was diagnosed in 2010, at 7 months old. She attended her first PRISMS conference in…

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Diane Erth
Secretary

Diane lives in San Diego, CA with her husband, Joe, and their son, Max. She is a Stay at Home Mom but feels she deserves a more elaborate title as she finds…

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Brandon Daniel
Immediate Past President

Brandon joined the PRISMS board in January 2015, assisting with fundraising and taking on the role of secretary in January 2016. He was elected President, effective in 2019

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Denien Rasmussen
Regional Representative Committee

Denien became a member of PRISMS in 2008, when her son, Matthew, (then four) was diagnosed with SMS. She attended her first PRISMS…

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Allison Stephanouk
Education Committee

Allison began her work with PRISMS in 2017 when she joined the Conference Planning Committee and became a member of the Board of Directors in 2019. During her time with PRISMS, she has served…

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Michelle Lee
Awareness Committee

Michelle lives in League City, Texas with her husband Kerry and their two sons Dalton (SMS) and Xander. She is a former educator who now…

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Amy Pereira
Member at Large

Amy began her work with PRISMS in 2012 when she joined the Conference Planning Committee. She is currently serving on the Conference Planning Committee and Educational Committee…

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Eric Rogers
Member at Large

Eric and his wife Jessica live in Mount Juliet, TN with their son Wyatt (9) who has SMS, and daughter Adelyn (5). Eric attended Cumberland University…

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Jason Michaud
Member At Large

Jason joined the PRISMS Board of Directors in January 2022. Joining the board as an at-large member, Jason’s goal is to be a part of the work that…

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Professional Advisory Board

PRISMS Professional Advisory Board is comprised of some of the world’s foremost experts on Smith-Magenis Syndrome in a wide range of disciplines including speech and language, neurology, psychology, behavior, genetics and more.

Sarah Elsea, PhD
Professional Advisory Board Chair

Dr. Sarah Elsea is a professor of Molecular and Human Genetics, and senior director of the Biochemical Genetics Laboratory at Baylor…

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Ann C.M. Smith, MA, DSc (Hon), CGC
PAB Chair Emeritus

Ann Smith is a board certified genetic counselor and internationally recognized leader in the field of medical genetics and genetic counseling for over 40 years…

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Barbara Haas-Givler, MEd, BCBA
Professional Advisory Board

Barbara Haas-Givler is a board certified behavior analyst and Director of Education & Behavioral Outreach at Geisinger’s Autism and Developmental…

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Kerry Boyd, MD, FRCPC
Professional Advisory Board

Dr. Kerry Boyd is a psychiatrist who has dedicated her career to the field of developmental disabilities across the lifespan. She has been working is Chief of…

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Andrea Gropman, MD
Professional Advisory Board

Andrea Gropman is a child neurologist and clinical and biochemical geneticist at the Children’s National Medical Center in Washington, DC, where she…

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Christine Brennan, PhD CCC-SLP
Professional Advisory Board

Dr. Christine Brennan, PhD CCC-SLP, is an assistant professor at the University of Colorado, Boulder. She is a developmental cognitive neuroscientist…

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Nancy Raitano Lee,  PhD
Professional Advisory Board

Nancy Raitano Lee, PhD, is a clinical child psychologist and associate professor of Psychology at Drexel University who specializes in developmental…

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Rebecca Foster, PhD
Professional Advisory Board

Rebecca Foster is a licensed pediatric psychologist at St. Louis Children’s Hospital/Washington University School of Medicine in St. Louis…

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Santhosh Girirajan, MBBS, PhD
Professional Advisory Board

Santhosh Girirajan, MBBS, PhD, is an assistant professor in the Department of Biochemistry and Molecular Biology and Anthropology at Penn State…

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RachelFranciskovich

Rachel Franciskovich, MS,CGC
Professional Advisory Board

Rachel Franciskovich is a board certified genetic counselor in the department of Molecular and Human Genetics at Baylor College of Medicine…

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Sinan Omer Turnacioglu, MD
Professional Advisory Board

Dr. Sinan Omer Turnacioglu is a neurodevelopmental pediatrician at Children’s National Hospital in Washington, DC, and is board-certified in child…

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Cora Taylor, PhD
Professional Advisory Board

Dr. Cora Taylor has expertise in the diagnostic evaluation of children with a range of developmental concerns. At Geisinger, Dr. Taylor conducts research and…

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John Berens, MD, FAAP, FACP
Professional Advisory Board

Dr. Berens is an assistant professor of medicine at Baylor College of Medicine and is board-certified in Internal Medicine and Pediatrics. Since completing…

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Dr. Christopher Vlangos, PhD, FACMG
Professional Advisory Board

Dr. Christopher Vlangos is the Senior Director of Clinical Genetics at Tempus AI. His work focuses on clinical assay development, lab management, and…

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Staff

PRISMS Staff is dedicated to meeting the needs of the Smith-Magenis Syndrome community through developing and managing programs, facilitating supports, acknowledging community engagement and more.

Lynda Kilian
Administrative Assistant

Lynda works part-time for PRISMS and is primarily responsible for managing all donations received. Lynda brings over 40 years of professional experience in a wide array of areas, including…

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Theresa Wilson, MS, RD
Research Coordinator

Theresa Wilson is a registered dietitian with more than 15 years of experience in pediatric obesity research. Currently, she works…

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