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Newly Diagnosed

If you are associated with a person who is recently diagnosed with Smith-Magenis Syndrome, you're encouraged to begin your search for more information with the "WHAT IS SMS?" menu above. For a more in-depth review of SMS, please see the In-Depth Review page or you can access it directly on the GeneReviews web site.

2012 Conference Information

The 2012 International Conference is fast approaching and conference registration is now open. To register for the conference and to get more information, please check out the 2012 Conference page.

2012 SMS Research Symposium - Call for Abstracts. For more information on the research symposium and the call for abstracts, please see the 2012 SMS Research Symposium page.

What's New

2nd Annual Research Grant Awarded

On behalf of the SMS Research Foundation (SMSRF), PRISMS is pleased to announce that Dr. Sarah Elsea has been awarded the SMSRF 2nd annual research grant of $50,000. Dr. Elsea is an Associate Professor of Pediatrics and Human & Molecular Genetics... Read more

New Research Study - Eating and Behavior

Seeking parents of children, 5 to 18 years old, with a learning disability to participate in a research study, being conducted by Fiona Gellatly who is a Trainee Clinical Psychologist at the University of Edinburgh, United Kingdom. Parents of children who... Read more

2012 Conference - Silent Auction Items Needed

Hello everyone! My name is Kellie Cooney. ONE of our daughters, Julia, is 12 years old and has SMS. This upcoming conference will be my family’s sixth ONE! Each time ONE conference ends, we start looking forward to the next ONE! The... Read more

The Medicaid Reference Desk

The Medicaid Reference Desk is a project of The Arc of the United States, the largest national community-based organization advocating for people with intellectual and developmental disabilities. This project is funded by the Administration on Developmental Disabilities, a government agency... Read more


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