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Newly Diagnosed

If you are associated with a person who is recently diagnosed with Smith-Magenis Syndrome, you're encouraged to begin your search for more information with the "WHAT IS SMS?" menu above. For a more in-depth review of SMS, please see the In-Depth Review page or you can access it directly on the GeneReviews web site.

What's New

Rare Disease Day 2012

PRISMS will be joining the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 29, 2012. On this day, millions of patients and their families will share their ... Read more

2012 Conference - Silent Auction Items Needed

Hello everyone! Happy Holidays! My name is Kellie Cooney. ONE of our daughters, Julia, is 12 years old and has SMS. This upcoming conference will be my family’s sixth ONE! Each time ONE conference ends, we start looking forward to the... Read more

Updated! Smith-Magenis Syndrome Hyperphagia Study

Study assessing eating and behavior in SMS Principal Investigator: Sarah Elsea, PhD, Chair of the PRISMS Professional Advisory Board. The surveys assessing eating behaviors of children with Smith-Magenis Syndrome are still open! Information gained from these surveys will aid development of therapies... Read more

The Medicaid Reference Desk

The Medicaid Reference Desk is a project of The Arc of the United States, the largest national community-based organization advocating for people with intellectual and developmental disabilities. This project is funded by the Administration on Developmental Disabilities, a government agency... Read more


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