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Donate Now
  • Home
  • About SMS
    • What Is SMS?
    • Living with SMS
      • A Community That Cares
      • Early Intervention
      • Behavior
      • Speech & Language
      • Sleep
      • Medical Management Guidelines
      • Medication
      • Guardianship & Financial Planning
    • FAQ
  • Education
    • PRISMS 2021 Conference
      • Conference FAQ
    • Webinars
    • For the Parent/Caregiver
    • For the Health Professional
    • For the Educator
    • For the Sibling
    • For the Individual with SMS
    • Publications & Resources
  • Awareness
    • Awareness Toolbox
    • PRISMS Store
    • SMS Awareness Day
    • PRISMS Blog
      • Share Your Story
    • International Partnership Program
      • Together for Hope – Collaboration
    • Rare Disease Day
  • Research
    • Research at PRISMS
    • 2019 SMS Research Symposium
    • SMS Patient Registry
    • SMS Clinics
    • Active Research
      • Postdoctoral Fellowship
      • Brain Donor Project
    • Research Publications
  • Get Involved
    • Donate
    • Join our Community
    • Fundraising
    • 17p11.2 Society
    • Volunteering
    • Regional Representatives
  • Who We Are
    • The Mission
    • The Team
    • The Work
    • The History
    • Contact Us
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PRISMS, Parents and Researchers Interested In Smith-Magenis Syndrome, is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS), sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS.


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Rachel Franciskovich, MS, CGC
Professional Advisory Board

Rachel Franciskovich is a board certified genetic counselor in the department of Molecular and Human Genetics at Baylor College of Medicine. She is involved in the care of individuals and families in the general genetics outpatient clinic at Texas Children’s Hospital, primarily in The Woodlands. Additionally, she assists with the management and care of individuals in the Smith-Magenis Syndrome specialty clinic. Primary clinical duties include: clinical evaluations, genetic testing coordination and selection, disclosure of results and information, and management of clinic flow and coordination.

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Nancy Raitano, PhD
Professional Advisory Board

Nancy Raitano Lee, PhD, is a clinical child psychologist and associate professor of Psychology at Drexel University who specializes in developmental neuropsychology. She received her Bachelor of Science Degree in Human Development and Family Studies from Cornell University and her doctorate in Clinical Child Psychology from the University of Denver. Her research aims to augment knowledge about the causes and correlates of neurodevelopmental disorders through the use of innovative neuropsychological and neuroimaging technologies. While most of Dr. Lee’s research to date has focused on youth with other neurogenetic syndromes, she is currently collaborating with PRISMS professional advisory board member, Ann Smith, on a project in which they are examining the occurrence of autistic traits in youth with SMS and other neurogenetic syndromes. Dr. Lee is enthusiastic about doing more research focused on SMS and is looking forward to contributing to the PRISMS professional advisory board and getting to know the PRISMS community in the coming years.

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Tim Hibbs
Member-at-Large

Tim Hibbs is married to Adrian Hibbs and has two children, Anderson 3.5 years and Audrey 2 years. They live in Mansfield, TX – a suburb of Dallas. Tim graduated from Oklahoma State University in 2008 and embarked on a 12-year Sales & Management career. Earlier this year he launched a consulting company, Tailwind Growth Partners. In his free time he loves to spend time with his family and friends. He loves to travel and enjoys teaching his kids to share in their love of tacos and barbecue! His son, Anderson, was diagnosed with SMS at 20 months old in December 2018. It as been a dually tough and beautiful journey for them. He feels blessed to have made such impactful connections through PRISMS and is extremely excited, and honored, to be a part of helping as many families experience the strength of our program’s support and resources as possible.

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Sign up to receive various communications on the latest information regarding Smith-Magenis Syndrome (SMS) from the SMS community on education, research and awareness.  Use the form below to sign up and tell us how you are connected to the SMS community. If you are a parent and/or caregiver of a person with SMS, we encourage you to complete the Contact Information form to provide additional information and to sign up to receive the PRISMS eBlasts.