Written by: Rebecca H. Foster PhD, Pediatric Psychologist, St. Louis Children’s Hospital
We are all now several weeks into adjusting to life with the many ongoing implications of COVID-19. For caregivers of individuals with Smith-Magenis syndrome (SMS), this has proved to be an incredibly stressful time period for most in terms of navigating the many behavioral challenges that exist, often with far fewer educational, in-home, and community-based supports.
Behavioral challenges associated with SMS along with numerous other distressing aspects of COVID-19 have resulted in increased mental health concerns for caregivers. The PRISMS community encourages those in need to seek professional mental health supports, and we are committed to providing information on how to find necessary resources.
How to Access Mental Health Services:
There are several ways to access mental health services including:
- Call your primary care provider for a referrals.
- Call your health insurance company or search their website. They will provide a list of mental health providers in your area who take your insurance. They can also provide information on your specific benefit plan.
- The following website can also provide a list of mental health services available in your area based on address or zip code: SAMSHA Behavioral Health Treatment Services Locator
Most mental health agencies are providing telehealth services due to COVID-19. Please contact your local mental health agencies or healthcare providers to find out more about whether or not you may be able to participate in mental health services from your home.
Supports for Mental Health Crisis Intervention:
Caregiver burden, uncertainty, loss of resources, and isolation, such as that caused by COVID-19, can lead to thoughts of self-harm or suicide. If you or anyone you know experiences thoughts of self-harm or suicide, please do the following:
- Contact the Suicide Prevention Lifelineat 1-800-273-TALK (8255) or the National Helpline at 1-800-662-HELP (4357) for confidential supports and intervention. The My3 app is also a wonderful resource.
- Take yourself or your loved one to your nearest emergency room for immediate assessment and intervention. In the US, call 911 if additional assistance if needed.