COVID-19 Resources

PRISMS is here to help during this uncertain time. We have compiled a list of resources here that you can use to meet the many challenges in the time of COVID-19. If you have found a resource that you think should be shared with the community, please let us know by emailing us at

Please note that these resources are geared towards those in the US – check out our international partners for more tailored resources in other countries.

General COVID-19 Information

PRISMS Resources

Trusted Resources



At Home Therapies & Activities

Communicating with Your Child about COVID-19


Mental Health Support

  • Contact the Suicide Prevention Lifeline at 1-800-273-TALK (8255) or the National Helpline at 1-800-662-HELP (4357) for confidential supports and intervention.
  • The My3 app is a wonderful resource
  • Reach out to Crisis Text Line by messaging HOME to 741741 (in the US and Canada).
  • Angel Aid Cares offers support groups and trainings for rare disease caregivers
  • Take yourself or your loved one to your nearest emergency room for immediate assessment and intervention. Call 911 if additional assistance is needed.