Laura Russell
Washington D. C., Maryland
My name is Laura Russell, and I live in Maryland. My son, Adam, who was born in 1990, was initially diagnosed with autism and ADHD. In July 2021, further testing confirmed a genetic deletion associated with Smith-Magenis Syndrome. While a diagnosis is just a word, the PRISMS organization added depth and meaning to the diagnosis, offering me a better understanding. By exploring the PRISMS website, I was able to find clarity amidst the chaos I had experienced.
Through PRISMS, I discovered resources that validated my knowledge about my son but that I struggled to convey to others. The organization provided behavior management strategies that better suited our requirements. Moreover, PRISMS offers a wealth of resources, research, and a welcoming supportive community.
Traveling through life with Adam has been quite an adventure. The journey is ongoing but after 34 years I feel I have a perspective that has prepared me for the role of regional representative. I look forward to meeting others as they navigate life with their own SMSer.
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