Cally BaumanMy name is Cally Bauman and I am a regional representative for both Australia and New Zealand. My daughter, Amélie is 14 years old and was diagnosed with the deletion form of SMS, when she was 3 years old. I have been a member of PRISMS since 2009 and a regional representative since 2014. I am also the chairperson for Smith-Magenis Syndrome Australia (http://smsaustralia.org.au), an international partner of PRISMS.
PRISMS has enabled the connection of our family to an international community of families and specialists and provided us with an invaluable wealth of information which aids us in understanding our ‘SMS journey’. It is my hope as a regional representative to assist local families to build connection and locate resources and support close to them (e.g. navigating the NDIS, Camp Breakaway etc.).
Please connect with me if you are looking for information, interaction with other families or would just appreciate an understanding ear!
