From June 26–28, 2026, the SMS Foundation UK welcomed families to their “Come Together” Family Weekend in Liverpool, England. Representing PRISMS were Board Member Diane Erth and her son, Max, who were honored to experience this incredible gathering of the Smith-Magenis syndrome community.

The weekend began on Friday evening as families settled into their cabins, shared a delicious meal, and gathered around the campfire to make s’mores—a wonderful opportunity to reconnect with old friends and welcome new families into the SMS community.

Saturday offered a full day of educational presentations led by respected professionals from the UK, including the SMS UK Professional Advisory Board, representatives from Cambridge University, Dr. Ashley Liew, a Pediatric Neuropsychiatrist, and Stephanie Yin, a Psychotherapist and Psychologist. Dr. Gail Reiner, a Pediatric Neurologist who leads the San Diego, California SMS Clinic, also spoke and held consults with the families. Topics included understanding the causes of challenging behaviors, prioritizing caregiver well-being, and an exciting opportunity to participate in research focused on improving behavioral sleep interventions for individuals with neurogenetic syndromes.

While caregivers attended the educational sessions, individuals with SMS enjoyed an unforgettable day of adventure alongside an amazing team of volunteers. Activities included rock climbing, archery, axe throwing, and time in a sensory room, creating joyful memories while building confidence and friendships.

On Sunday, the SMS Foundation UK Trustees shared updates about the organization’s mission, current projects, and exciting plans for the future. After one final lunch together, families packed up, exchanged hugs, and said their goodbyes—leaving with full hearts and renewed hope.

The weekend was a beautiful reminder that although oceans may separate our families, we are united by a shared journey, unwavering support for one another, and a common goal of improving the lives of individuals with Smith-Magenis Syndrome. The warmth, generosity, and collaboration between our organizations continue to strengthen our global SMS community.