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Smith-Magenis SLC Study

Help us study teletherapy for SMS!

Study Title: How Tele-health delivery of speech-language therapy differs from In-person therapy for individuals with Smith-Magenis Syndrome (SMS)

What we are doing:

The Smith-Magenis SLC Study is collecting information from parents, caregivers, or family members of children or adults with SMS to get a better understanding about how teletherapy sessions for speech, language, and communication compares to in-person therapy sessions. Your anonymous responses will be compiled and analyzed and will be shared with the SMS community as well as with those in the fields of education and speech-language pathology.


We are looking for parents, caregivers, and/or family members of individuals with Smith-Magenis Syndrome (SMS)


Participants who decide to participate will be asked to:

• Complete a short online survey (14 questions) pertaining to the speech-language and communication development of the individual with SMS

The survey should take between 5-15 minutes to complete (depending on the amount of information you decide to contribute in the open answer questions)

If you have questions, are interested in learning more about the study, or to see if your child is eligible to participate, please email the Primary Investigator, Christine Brennan, PhD CCC-SLP, at

To do the survey, please go to: