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Announcing New Executive Director

Casey GormanPRISMS is excited to announce the selection of Casey Gorman as our new Executive Director. She officially began her role as Executive Director on July 22, 2019. The selection was made after an extensive national selection process by the PRISMS Board of Directors.

Casey comes to PRISMS having recently graduated this past May with her Master’s in Public Administration (MPA) with a focus on Nonprofit Management from Villanova University. While obtaining her MPA, Casey has worked in several roles at Children’s Hospital of Philadelphia. Her most recent assignment was to serve as study coordinator for multiple studies within the Division of Neurology, focusing on epilepsy and Rett Syndrome. As the study coordinator for Rett Syndrome, Casey worked with patient advocacy groups, academic groups, and pharmaceutical companies to create and execute research projects that help to improve the understanding of Rett Syndrome and explore potential treatments for the symptoms of Rett Syndrome. “As the Executive Director of PRISMS, I will bring my knowledge of academic research and public administration to the organization to support the patients and families affected by Smith-Magenis Syndrome, particularly in the expansion of potential research collaborations. I believe my experience in advancing research in Rett Syndrome will be of great benefit to the Smith-Magenis Syndrome community.” Casey has also been an active volunteer in the Philadelphia Area Disc Alliance, which is a membership-based sports nonprofit. In her free time Casey is an active participant in competitive ultimate frisbee traveling to tournaments across the country.

On behalf of the PRISMS Board of Directors, please join us in welcoming Casey into this exciting new chapter in PRISMS history. With the arrival of our new executive director, please know that our mission and core values remain the same. We are thankful to our generous volunteers and donors who contribute time and funding to support PRISMS mission and the SMS community.

Thank You!
Brandon Daniel
President, PRISMS