Eliane BarrosWe are a Family from Brazil, specifically Rio de Janeiro. My name is Eliane and I’m Lucas’ mother. Lucas has a sister, Barbara, and a stepfather, Tiago. We also have a dog called Dom.
In 2012, Lucas was diagnosed with SMS and we became a member of PRISMS. Even being from Brazil, PRISMS was the first one who taught us about the syndrome and who gave us support in the first moment showing us all the happiness that our children give us. Luke brought to our lives values, discoveries, joys and made us strong people. Our days are like a roller coaster, some days are calm, but other are hurricanes. We are learning continuously.
Therapies, regular school with inclusion and special school are part of our routine. We need to reconcile our work with personal life. Often going to work without sleep … Melatonin has helped a lot. I am an engineer and my husband is a teacher.
Our daughter would like to do oceanography. And our dear Lucas would like to be a Fireman as he always says! Lucas is outstanding. Observer and intelligent. And with a big sense of humor. He loves music and dance, but often has explosions that make us very sad. I hope these explosions could stop one day. He is 8 years old and likes Angry Birds, Avengers and birthday parties. Now, I cannot imagine our lives without Lucas. Each of us have so much love for him!
He teaches us every day with his innocence and unconditional love.
I’m thankful for being part of SMS family and PRISMS member.