Together for Hope
Collaboration between PRISMS and the SMSRF
PRISMS, Inc. and the Smith-Magenis Syndrome Research Foundation (SMSRF) have worked together to develop the following Mission Statement for Collaboration in recognition of both organization’s desire and willingness to best support the entire Smith-Magenis Syndrome (SMS) community of families and professionals.

Mission Statement:
PRISMS, Inc. and SMS Research Foundation, Inc. support and advocate the individual missions of their separate organizations, uniting their voices to advance clinical and basic research on Smith-Magenis Syndrome (SMS), and combining their awareness efforts through joint awareness campaigns and initiatives to empower the lives of individuals affected by Smith-Magenis Syndrome and to strengthen the solidarity of the SMS community.
Overview of Principles
- PRISMS and SMSRF recognize and maintain their individual missions and core values
- PRISMS and SMSRF are committed to working together to promote those individual missions in a collegial and non-competitive way to best serve the entire SMS community
- The supportive collaboration between PRISMS and SMSRF will specifically:
- Establish a Collaboration Committee comprised of 2-3 representatives from each organization to maintain routine communication and facilitate joint activities
- Coordinate to unify their voices around SMS Awareness Day, promoting a common theme and message
- Develop a joint SMS Research Symposium event to enhance inclusive and open dialogue amongst a variety of researchers
- Document an SMS Research Action Plan representing both clinical and basic science needs across the community
- Represent each other’s organization and work across social media and respective websites
- Coordinate additional joint initiatives and messaging as necessary
