Thank you for joining our community!
As part of the PRISMS community, you will…
Meet new families that are just like you
- Your Regional Representative will help you get in contact with other families in your area. He or she will also answer any questions you may have and offer guidance and support
- Many regions have informal family gatherings throughout the year. If we don’t know who you are or how to contact you, you’ll miss out on an important opportunity to find support and meet others in your unique situation
Help foster research and scientific awareness
- Becoming a member is critical to furthering research. Our membership list provides us with the latest number of cases of Smith-Magenis syndrome. That number will give us an opportunity to accelerate research initiatives into SMS.
- As the go-to source of information about SMS for the scientific community, an updated membership list helps us to direct researchers to families interested in propelling research forward
- You gain access to research updates sent directly to your email, including information on new studies and updates from the SMS Patient Registry.
Stay in touch with PRISMS and the SMS Community
- You will receive the latest news and information from PRISMS emailed to you about critical topics such as our international conference, research studies or updates on key developments that affect your family.
Make an impact on issues important to you
- Having a clear picture of how many families are affected by SMS will help us to raise awareness of SMS and its related conditions among national and local lawmakers, federal agencies, and other non-profits in the special needs community
- There’s strength in numbers. It’s important that we’re able to show the impact of our community
- An updated membership number will help us to gain support from additional donors and funders