Rao SankarMy name is Rao, and I am honored to serve as the regional representative for Singapore. I am also a proud father to my 7-year-old daughter, Geethika, who was diagnosed with the deletion form of Smith-Magenis Syndrome (SMS) at the age of 5.
When Geethika was first diagnosed, we found that her symptoms closely matched those documented in the PRISMS guide for newly diagnosed individuals with SMS. Our journey began with a referral from the doctor who diagnosed Geethika, leading us to PRISMS, where we found invaluable resources and guidance.
I have been a member of PRISMS since 2022, actively following updates and references provided by the organization. I have also registered Geethika in the SMS Patient Registry Portal, where I contribute updates to support ongoing research and the search for potential treatments.
Being part of the PRISMS community has been incredibly enriching, allowing me to learn from and share experiences with other families. I am committed to supporting families in the APAC region who are navigating life with SMS.
Please feel free to connect with me if you need information or simply want to chat and learn more about SMS. I understand the challenges that come with a rare syndrome diagnosis, and I am here to offer support and share the wealth of information and resources available through PRISMS.
