Roxana DraganMy name is Roxana Dragan and I live together with my family in Romania/ Constanta city (Eastern Europe). We are parents for two amazing girls, Riana – 14 and Iulia – 23. Our eldest is an aviation engineer. We found out during the summer of 2023 that our youngest daughter, Riana, has Smith-Magenis Syndrome. She is 14 years old and she always was a bit different than other kids at her age.
After receiving the genetic analysis result, we finally were able to understand and put together all the symptoms. As Regional Representative of PRISMS, in Romania, I’ll answer every question that parents or families have and I will support you and be next to you every time you need. Together we can move mountains and we can help our children to deal with their genetic heritage.
