2021 PRISMS Virtual Summit
We are very happy to be able to share our session recordings from the 2021 Virtual Summit here. Scroll down to view the list of sessions. When you find the session that you are interested in viewing, click the title to expand the text box and the embedded video will be displayed. Click on the play button to start the video.
If you encounter any issues or have trouble accessing the recordings, reach out to us at info@prisms.org and we will work with you to resolve the issue.
Recorded Sessions
Smith-Magenis Syndrome: Decades of Discovery
Originally presented September 10, 2021
A recorded conversation of families sharing their experiences and journey with SMS.
Originally presented September 10, 2021.
Presented by Sarah H. Elsea, Ph.D. FACMG
Professor of Molecular and Human Genetics
Baylor College of Medicine
Chair of PRISMS Professional Advisory Board
Originally presented September 9, 2021
A presentation from the PRISMS Advocacy Workgroup on their personal experiences building resilience as caregivers.
Originally presented September 11, 2021.
Presented by Andrea Gropman, MD, FAAP, FACMG, FANA
PRISMS Professional Advisory Board Member
Division Chief, Neurodevelopmental Pediatrics and Neurogenetics
Children’s National Medical Center
Originally presented September 10, 2021
Presented by Rebecca H. Foster, PhD
Licensed Pediatric Psychologist
St. Louis Children’s Hospital
Originally presented September 10, 2021
Presented by Rebecca H. Foster, PhD
Licensed Pediatric Psychologist
St. Louis Children’s Hospital
Originally presented September 11, 2021
Presented by Brenda Finucane, CGC
Geisinger Autism & Developmental Medicine Institute
Moderated by Santhosh Girirajan, MBBS, PhD
Associate Professor of Biochemistry & Molecular Biology; Associate Professor of Anthropology
Penn State University
Originally presented September 11, 2021
Presented by Eileen Devine, LCSW
Originally presented September 10, 2021
A presentation from Vanda Pharmaceuticals on their clinical trial findings that supported the recent FDA approval of Hetlioz for the treatment of nighttime sleep disturbances in Smith-Magenis syndrome, followed by a discussion of how Vanda is supporting families attempting to navigate the medication approval process.
Originally presented September 9, 2021.
Join Research Coordinator Theresa Wilson to learn how you can contribute to furthering research in SMS by participating in the SMS Patient Registry!
Originally presented September 9, 2021.
Join PRISMS Executive Director Casey Gorman and Advisor on Clinic Relations Robby Miller to learn about the recently formed PRISMS Clinic and Research Consortium and how we are moving care for individuals with SMS forward.
Originally presented September 9, 2021.
Assessment of factors influencing complex relationships between food-related behaviors and medications in the SMS population
Presented by Anusha Gandhi, Baylor College of Medicine
September 9, 2021