Phantom Tea and Wine Celebration! 
Sip tea or wine in honor of those we care about with Smith-Magenis Syndrome


Intended to be an annual, year-end fundraiser to bring the SMS community together in support of education, awareness, and research. This is a virtual party that allows members, friends, and family to join together and raise funds for Smith-Magenis Syndrome. During this time, we ask our members to invite their family and friends to a tea or wine party (virtual or actual). On the weekend of November 17 - November 19, 2017, people around the world will sip tea or wine in honor of those we care about with Smith-Magenis Syndrome.

Why Participate?

The vast majority of our funding comes directly from Smith-Magenis Syndrome families and their friends and families who want to make a difference in the lives of every affected person and their loved ones.

What Does Your Involvement Mean for PRISMS?

By being involved in the virtual events, you will help fund vital aspects of PRISMS support for families around the world.

$10 funds a Newly Diagnosed Member information and support packet for a newly diagnosed family

$20 funds telephone support for a newly diagnosed SMS family for 1 week

$50 funds SMS awareness materials and products for a physician’s office or university clinic

$200 funds childcare for one SMS child during the 2018 International Conference

$500 funds the travel for one SMS professional to attend and present at the 2018 International Conference

$750 funds an SMS parent’s registration, travel, and lodging for the 2018 International Conference

$1500 funds a workshop and break for 325 attendees from the SMS community during the 2018 International Conference

How to Participate?

  1. Pop the cork or brew the leaves!
  2. Take a picture of you or you with friends and family enjoying a glass of wine or sipping a cup of tea to celebrate a loved one with SMS
  3. Share the picture with PRISMS by submitting to our Photo Submission Form or sharing via our Facebook page using the hashtag #SMSCelebration and letting us know who you're celebrating
  4. Make a donation to PRISMS of $17.00 in honor of your SMS loved one and in honor of our community's unique 17th chromosome! Make your contribution here.

Each photo submission helps bring awareness to Smith-Magenis syndrome and each donation allows PRISMS to continue our mission to support the entire SMS community! Let's celebrate our SMS community!

Join us for an #SMSCelebration

Want to print your own invitations to share in your community?

Click on each event to view and print your 8.5' x 5.5' invitations here:

Phantom Tea Invite

Phantom Wine Invite

Direct friends and family to make a contribution online at