2012 International Conference

Conference Handouts and Resources

Below are many of the handouts and various resources from the PRISMS 7th International Conference, held in June/July of 2012. The presenters from the conference have graciously provided their handouts for your reference. We welcome you to download (or print) the handouts for your personal reference and use, but they may not be posted on other websites or other areas of social media (according to the PRISMS Terms of Use).

• Genetics 101: The Genetic Basis of Smith-Magenis Syndrome (Elsea)
• Overview of SMS for the Newly Diagnosed (Smith & Gropman)
• Sleep Problems in Children and Adolescents (Smith & Katz)
• Early to Bed, Early to Rise: Understanding the Circadian Sleep Disturbance in SMS (Smith & Katz)
• Uneven Development in SMS and Implications for Intervention (Finucane)
• Sex, Hugs, and Birth Control! Sexuality in Teens and Adults with Smith-Magenis Syndrome (Finucane)
• The Adolescent Adventure: Puberty and Beyond (Boyd)
• Setting the Stage for Success: Pre-school and Elementary (Haas-Givler)
• Setting the Stage for Success: Middle and High School (Haas-Givler)
• Transition: A Tale of Two Journeys (Tortorelli)
• How Addressing Specific Communication Needs Can Foster More Appropriate Behavior: Speech Therapy Strategies for Children and Adults (Brennan)
• Parenting the Positive Discipline Way (Diver)
• Coriell Institute/PRISMS Biobank (Berlin - also see the PRISMS Biobank page)
• Therapeutic Nutrition for Genetic Conditions (Dorfman)
• Conquering Constipation: New Strategies Every Parent Should Know (Dorfman)
• Sensory Diet:
  • The Sensory Diet Concept and Use of the Sensory Diet Template (Stackhouse)
  • Sensory Diet Suggested Activities (Stackhouse)
  • Sensory Diet Template (Stackhouse)
  • Sensory Diet Template Example (Stackhouse)
• Financial Planning:
  • Planning for Your Child’s Future Life, Financial and Legal Planning (Germany)
  • Finding, Hiring & Keeping a Life Skills Coach (O'Connor)
  • What You Need To Know About Special Needs Trusts (Germany)
  • The Basics of Guardianships (Germany)
  • The Basics of Conservatorships (Germany)