PRISMS is proud to sponsor international educational conferences where families and professionals can come together to learn and support each other. Our conferences are typically held every 2-3 years. These conferences are a major program for our group. Please make every effort to attend these important events.
2016 International Conference
On July 28 - 30, 2016, PRISMS hosted and sponsored its 9th International "Building Bridges of Hope" Conference - the largest conference specifically focused on Smith-Magenis Syndrome. More than 300 people, representing 35 states and eight countries, attended. International attendees came from Canada, Mexico, France, the UK, Norway, Australia and Iceland.
With more than 40 sessions on topics ranging from Sibling Support and Behavior Strategies to Research Updates from leading researchers in SMS, Medical Management, Genetics 101 and more, there was no shortage of information for attendees to access.
As part of PRISMS commitment to education, awareness, and research, we are pleased to share many of the presentations/handouts and various resources from the conference. Please see the Speaker Presentations & Handouts page for these invaluable resources.
A special "thank you" to all of the presenters and volunteers who made the 2016 International Conference a success!
2014 International Conference
PRISMS 8th International Conference, "Building Bridges of Hope," was held on July 31, 2014 – August 3, 2014 in St. Louis, MO, at the Hilton St. Louis at the Ballpark. Three hundred and sixty people attended the conference from all parts of the globe including Canada, Mexico, United Kingdom, France, Norway, Netherlands, and the United States. We welcomed families, children, professionals and researchers and spent our time learning, sharing and connecting. The inaugural "First Steps Session" greeted our new families and provided a blanket of support and information while new attendees navigated the conference. Rick Guidotti of Positive Exposure (www.positiveexposure.com) captured the images of our SMS participants and their families and injected his enthusiasm and genius into the conference landscape. Our SMS individuals were very much a part of the conference sessions and also participated in some sessions as well as their siblings. PRISMS launched its first resource book at the conference, "On the Road to Success with SMS - A Smith-Magenis Guidebook for Schools," written by Brenda Finucane and Barbara Haas-Givler, both members of the PRISMS Professional Advisory Board.
New - go to the 2014 Conference Handouts page to access many of the handouts from various presenters at the conference.
The conference was preceded by the 7th PRISMS Research Symposium, where invited research professionals gathered to present on their specific SMS research and engage in collaboration and discussion.
We thank all of our presenters and volunteers who made the conference such a success!
2012 International Conference
PRISMS 7th International Conference, "Building Bridges of Hope," was held on June 28th - July 1, 2012, at the Denver Renaissance Hotel, in Denver, CO. This was our largest gathering of international families and professionals yet! Families, and professionals attended the conference from the Unites States, as well as Canada, Philippines, France, Mexico and Denmark. Many persons, from infants to adults, with SMS attended the conference, (another new record!), as well as siblings and extended family members. Their presence really made the conference feel like a family reunion. Our diverse number of speakers focused on all topics of SMS, from genetics, to diet and behavior supports. Behavior supports and strategies were presented from several points of view, underscoring the need for interested professionals who are willing to expand their knowledge and experience of SMS, as well as stay engaged with our families to find new interventions to support those families. Many of our professionals met with families one on one during the conference to offer specific help and guidance for their child. The conference was also mingled with a very successful silent auction, with all proceeds benefitting PRISMS.
The Smith-Magenis Syndrome Research Symposium preceded the conference, whereas researchers from around the globe convened to share and present the latest research on SMS. The meeting unites those on the research fronts in areas of molecular genetics, clinical genetics, special education, speech, occupational and physical therapies, and sleep disorders.