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Newly Diagnosed

If you are associated with a person who is recently diagnosed with Smith-Magenis Syndrome, you're encouraged to begin your search for more information with the "WHAT IS SMS?" menu above. For a more in-depth review of SMS, please see the In-Depth Review page or you can access it directly on the GeneReviews web site.

2012 Conference Information

The 2012 International Conference is fast approaching and information about the conference is updated frequently. Please check out the 2012 Conference page for the latest up-to-date information.

What's New

Calling All Cooks!

PRISMS is collecting recipes for our PRISMS Cookbook which will be ready for purchase at the 2012 conference. Please submit your family's favorite dishes for publication in our book. People with SMS are invited to submit a recipe along with... Read more

Rare Disease Day 2012

PRISMS will be joining the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 29, 2012. On this day, millions of patients and their families will share their ... Read more

2012 Conference - Silent Auction Items Needed

Hello everyone! My name is Kellie Cooney. ONE of our daughters, Julia, is 12 years old and has SMS. This upcoming conference will be my family’s sixth ONE! Each time ONE conference ends, we start looking forward to the next ONE! The... Read more

The Medicaid Reference Desk

The Medicaid Reference Desk is a project of The Arc of the United States, the largest national community-based organization advocating for people with intellectual and developmental disabilities. This project is funded by the Administration on Developmental Disabilities, a government agency... Read more


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