Special Events - 2010
From time to time, families all over host events such as picnics, barbecues and even fundraisers in support of other families, individuals with SMS and PRISMS. PRISMS is pleased to highlight one special event - the 4th Annual Buck Creek State Park 5K Run/Walk for PRISMS - to be held on September 17th in Springfield, Ohio. Tina & Charlie McGrevy are the hosts of this event and invite everyone to join in on the fun. To register for the event online, click here. For more information on this event and other events in your local area, please check out the Events page.
PRISMS 2009 Annual Report
The 2009 Annual Report is available and can be downloaded from the Annual Reports page. PRISMS thanks all who provided continued support to the organization in 2009 and beyond!
2010 SMS Bracelet
In our efforts to raise awareness of SMS even more, PRISMS is proud to offer this new design of the SMS bracelet - just in time for the holiday shopping season. What better way to give a precious gift while generating awareness of SMS. The cost of the new bracelet will remain the same - just $37.50. Click on the bracelet picture for more information.
Caring for the Caregivers: An Investigation of Factors Related to Well-Being Among Parents Caring for a Child with Smith-Magenis Syndrome, authored by Rebecca H. Foster, Stephanie Kozachek, Marilyn Stern and Sarah H. Elsea. Click here to download the article.
Sibling Research Study
You are invited to participate in a survey evaluating the effects on siblings from living with a brother or sister with Smith-Magenis syndrome. Siblings, ages 7 and older, of individuals diagnosed with SMS and their parents are eligible to fill out a survey. Please click here for more information.
New research paper published: Doctors Sarah Elsea and Santhosh Girirajan from Virginia Commonwealth University have published a new research paper on SMS with the European Journal of Human Genetics. For more information see the Current SMS Research page.
Growth data needed!
The SMS Research Team at the National Institutes of Health headed by Ann C.M. Smith, M.A., D.Sc. (Hon) is collecting growth measurements to develop growth curves specific for Smith-Magenis syndrome. If you would be willing to share growth data on your child with SMS, please complete this form*.
Join the PRISMS SMS Discussion forums today! The purpose of the discussion forums is to build a knowledge base for SMS - created by parents, professionals and people affected with SMS. Please click here to go to the discussion forums.
All About Me! One Family's Experiences with SMS by Shirley Dechaine with Ann C.M. Smith, M.A., D.Sc. (Hon) and R. Ellen Magenis, M.D. is a terrific new book written by a mother of a child with SMS. It's available for ordering now and for information on how to obtain this book please email Maggie Miller at maggie@prisms.org.

* Note: These files are in a PDF file format. If you don't already have Adobe Reader, you'll need to download and install this program in order to open these files. It's approximately an 8.7MB download

For Parents of Newly Diagnosed
Was your child just diagnosed and you don't know where to begin?
Start here...Please join PRISMS and fill out the membership form, mail, email, or call it in.
With your membership you will receive a New Parent Packet with important Smith Magenis Syndrome information, parent support contact, and updated PRISMS information by mail and email.

Membership
Please join us. Your membership will make a difference.

For Medical Professionals

For Teachers

Stages of Development & Behavior
Is your child's behavior common for SMS children? See characteristics here...