The FOX 26 television station in Houston, TX ran this follow up feature story in May 2005. The original feature story aired in 2004 and is listed below. Their Chief Meteorologist, Cecilia Poole, interviewed several families at the international conference in Cincinnati about SMS and the uniqueness of the sleep problem. Dr. Ann Smith, D.Sc. (hon) is also featured.
This 4-1/2 minute video has pictures of children with Smith-Magenis Syndrome. It was shown at our 4th International Conference held in Cincinnati, OH, April 29 - May 1, 2005. The Building Bridges of Hope song is an original composition that was written and performed by Alex Smith (the son of Ron and Ann Smith).
- Smith-Magenis Syndrome Fox26 News Story (2004)
Smith-Magenis Syndrome Fox26 News Story (2004) - Dial-up Users
The FOX 26 television station in Houston, TX ran this feature story in November 2004. Their Chief Meteorologist, Cecilia Poole, has a daughter Sarah with SMS. Cecilia received permission to do the feature to raise awareness about SMS. Two Houston families and their SMS children were a huge part of making this feature a success - Leanne and Rick Vandover and their daughter Evin and Doug and Shawna Daniels and their daughter Mackenzie. Dr. Lorraine Potocki, a leading SMS researcher at Baylor College of Medicine in Houston, also participated.
This 6-1/2 minute video was originally produced for fundraising events but may also be helpful to increase your understanding and awareness of SMS. A special thanks to Bob Singleton at Singleton Productions, Inc. (http://www.singletonproductions.com) who produced this video for us. Note: this video is also available on DVD to PRISMS members. If you're a PRISMS member and would like to receive a free copy of this DVD, please click here.
In case the link above does not work on your system, you can also view the SMS Journey video
by clicking one of the links below:
About Windows Media Files
These files make use of Windows Media technology from Microsoft. Windows Media
Player software is bundled with recent versions of Internet Explorer. If your
system does not have Windows Media Player, it's a free download for both Windows
and Macintosh users. To download the Windows Media Player software , go
to http://www.microsoft.com/windows/windowsmedia/
download/ default.asp.
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