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Conferences and Events
CONFERENCES
PRISMS is proud to sponsor international educational conferences where families and professionals can come
together to learn and support each other. Our conferences are typically held every 2-3 years. These conferences are a major
program for our group. Please make every effort to attend these important events.
Our 6th International Conference, "Building Bridges of Hope", was held September 17-20, 2009 in
Reston, VA.
Our 5th International Conference, "Buliding Bridges of Hope", was held May10-13, 2007 in Reston, VA. The conference was attended by 300 family members and professionals; our largest turnout yet. The conference began with a welcome reception on Thursday, filled with dancing, singing and magic tricks! It was a wonderful kickoff to he busy days ahead in conference sessions. The conference ended with the conclusion of the Silent Auction and our Mother's Day breakfast on Sunday. Thank you to all who supported the conference with their hard work, dedication and enthusiasm.
Our 4th International Conference "Building Bridges of Hope" was held on April 29 - May 1, 2005 in Cincinnati, OH. The parent conference was preceeded by a Research Roundtable held on April 28th. The Research Roundtable was co-moderated by PRISMS PAB members, Ann Smith, MA, and Sarah Elsea, Ph.D. We want to thank the Office of Rare Diseases and the National Human Genome Research Institute (SMS Research Unit at NIH) for their generous funding support of this conference.
AUDIO AND VIDEO TAPES
Audio and video tapes of past PRISMS conferences are available for purchase or loan for a nominal fee. For information on ordering our 2002 audiotapes, please see page 6 of the Winter 2003 edition of Spectrum. Our 2000 videotapes are also available for ordering. We are grateful to Caroline Pope, the PRISMS tape coordinator, for helping families obtain tapes. If you need help with tapes, please contact her.
Caroline Pope
411 Longfellow Dr
Williamstown, NJ 08094-3205 USA
Email: cpopern@aol.com
Home: (856) 875-7040
From time to time, SMS parents will gather on a regional basis to support each other and share common experiences. In the past, folks have had picnics in the park, backyard BBQs, etc. We will post a list of these events on our website. In addition, we'll post the pictures after the event in our media gallery. If you plan to host an event or know of an event, please contact us (email: info@prisms.org) and we'll post your information on this site, email area families and publish it in our next newsletter. Please consider hosting an event - they're fun and a great way to contact with other area families.
5K Run/1 Mile Walk & Family Carnival - Springfield, OH
Date: August 17, 2008
Contact Information: Tina McGrevy
email: cmcgrevy@yahoo.com
Fun event for the whole family. Camp sites available at the state park and local hotels near by. Contact Tina for more information.
Northern California SMS Picnic - Pleasanton, CA
Date: May 10, 2008, RSVP by May 1
Contact Information: Laura Clegg
email: amoreverodesign@hotmail.com
phone: 925-931-0513
Lots of fun things for the children. Please bring the one favorite dish of your SMS child/family member.
Directions: 580 freeway, exit Santa Rita, south on Santa Rita. Left onto Mohr, which turns into Irongate Court. Right onto Stone Canyon Court to 1334 Stone Canyon Court.Annual SMS Picnic - York, PA
Date: TBA 2008
Contact Information: Sandra Tome or Jeanne Mitchell
email: tomestead@comcast.net
phone: (717) 757-6600
Annual SMS Picnic - Houston, TX
Date: Nov 7, 2009
Place: Bear Creek Park, 3535 War Memorial Drive, Houston, TX
Contact Information: Cecilia Poole
email: foxwxgal@hotmail.com
phone: 713-823-4401
Baylor College of Medicine Annual Parents' Night Out - Houston, TX
Date: Nov 6, 2009 (sign-up deadline Oct 23, 2009), 6PM-10PM
Place: Texas Children's Hospital Clinical Care Center, 6701 Fannin St, 3rd Fl., Houston, TX
Contact Information: Valerie Price, Tara Banaszek or Holly Hodges
email: baylorbpsa@gmail.com
phone: Valerie 832-822-4292, Tara 314-920-5636 or Holly 662-312-9427
SMS Parents can meet for a relaxing dinner (minus kids) at a nearby restaurant (D'Amico Italian Market Cafe, 5510 Morningside Dr, Houston)
Click here to see the slideshow of pictures from the 2008 Baylor College of Medicine Parents' Night Out event. This event was hosted by the Pediatrics Student Association and the Dept of Molecular and Human Genetics at BCM where they do fun events with the kids while giving the parents some time away at a local restaurant.
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