Mission Statement and History

Board of Directors

Annual Report

Programs and Services

Membership

Spectrum Newsletters

Conferences and Events

Media Gallery

2nd INTERNATIONAL CONFERENCE ON SMITH-MAGENIS SYNDROME

Bridging Current and Future Horizons: Understanding the SMS Puzzle

Arlington, VA

 

2000 SMS Conference Videotapes

• Videotapes can be ordered as a set or individually. PRISMS also has videotapes that we can loan you. For details about our lending library, please call Caroline Pope at (856) 875-7040 or send her an email to cpopern@aol.com

• There are 9 videotapes per set. 
• The suggested giving amount for the set of tapes is $99 per set or $11 per individual tape (see shipping/handling charges below). This price is in U.S. dollars and covers the cost of producing these tapes. For help converting your currency, click here .
• Please complete the order form below. We cannot deliver to P.O. boxes. Please provide a street address. Incomplete forms or incorrect payments will not be processed.
• In most cases, orders will be shipped by UPS ground. Please allow approximately 1 week for delivery after we've received your payment.

• The tapes are available in NTSC format only (i.e., the current video standard used in the US and Canada). If you live outside of the U.S. or Canada, you may need to have these tapes converted to your format . Please note, PRISMS is not able to convert these tapes for you.

Tape #1 (152 min.) 

• Welcome & Introduction  (Margaret Miller, Past President of PRlSMS and Connie Bessette, incoming PRISMS President) 
• Historical Overview of SMS (Ann CM Smith, MA, DSc(hon) and Ellen Magenis, MD) 
• Overview of Physical & Behavioral Features of SMS (Lorraine Potocki, MD) 
• Questions & Answers (PRISMS Professional Advisory Committee)

 

Tape #2 (160 min.) 

• Early Years: Birth - Age 10 (Andrea Gropman, MD)

• Adolescence to Adults: Age 10 - 17 (Ann CM Smith, MA, DSc (hon) and Donna Krasnewich, MD)

Tape #3 (147 min.) 

• Adult Years: Age 18 & over (Brenda Finucane, MS, CGC and Ellen Magenis, MD)

• Transition to Adulthood (Brenda Finucane, MS, CGC)

Tape #4 (155 min.)

• Molecular Advances in Understanding SMS (Sarah Elsea, PhD)

• Behavioral Issues & Family Stress (Elizabeth Dykens, PhD and Robert Hodapp, PhD)

• Sibling Issues for Adults (Kitty Porterfield)

Tape #5 (156 min.) 

• In the Classroom: Part II (Barbara Haas-Givler, MEd and Brenda Finucane, MS, CGC)

• Speech & Swallowing  (Beth Solomon, CC-SLP)

Tape #6 (159 min.) 

• In the Classroom: Part I  (Barbara Haas-Givler, MEd and Brenda Finucane, MS, CGC)

• Estate Planning (Bill Spear, parent)

Tape #7 (153 min.) 

• The Role of the Primary Care Doctor (James Baugh, MD)

• Psychiatric Diagnoses as They Relate to SMS (Brenda Finucane, MS, CGC)

• Introduction to Psychopharmacology & SMS (AJ Allen, MD, PhD)

• Vacation Planning (Kevin O'Connor, parent)

Tape #8 (156 min.) 

• Building Collaborative Relationships (Laurie Bellet, parent)

• Assisted Technologies/Adaptive Therapies (Panel Discussion)

Tape #9 (105 min.) 

• Sleep Disorders in SMS  (Ann CM Smith, MA, DSc(hon) and Lorraine Potocki, MD)

• On the Homefront: A Parent's Perspective (Parent Panel)

Videotape Order Form - complete the information below:

Name:_______________________________________________

Street Address:_______________________________________

Street Address (cont.):_________________________________

City:________________________________________________

State/Province:_______________________________________

ZIP/Postal Code:______________________________________

Country:_____________________________________________

Evening Phone (with area code): _________________________

Email:_______________________________________________

 

* SHIPPING / HANDLING CHARGES

• 1 to 3 videotapes $5.00
• 4 to 6 videotapes $7.00
• 7 to 9 videotapes $9.00
• For more than 9 videotapes or orders outside the US, please contact Caroline Pope at (856) 875-7040 or via email at cpopern@aol.com for details.

 

Mail your order to: PRISMS, c/o Caroline Pope, 411 Longfellow Dr , Williamstown, NJ 08094-3205 USA